The last few days I’ve been in a total crash, sleeping most of the day. It’s what I expected after having almost a week of good days where I got a lot done. I’m a little bummed out because I set up a zoom meeting with a bunch of local zebras over the weekend so that we didn’t feel so alone, but only one person showed up so that was better than nothing getting to see somebody’s face who goes through the same thing that I do on a daily basis. I also applied for a room at the community center in town for mid August to have about 20 different local people with EDS meet up in person for the first time. I’m really excited, because most of my support comes from online support groups and I don’t know anybody in real life that also has Ehlers-Danlos Syndrome. So I’m really hoping that the turnout for the live meeting is better than the turnout was for the zoom meeting. I’m waiting to hear back from the community center on if that day and time is available. fingers crossed!
Zebra Seeking Spoons
Surviving and thriving with chronic illness
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