The last few days I have hardly gotten out of bed. I’ve had to use energy I do not have stored to do the most basic things. I essentially started my days with a negative amount of spoons. Add to that the nausea cycle I’m in and it’s just been a miserable weekend. I’m really hoping things are better this week because next weekend I’m hosting the first in person Ehlers-Danlos Syndrome support group for my town and i need to gather my spoons for that. I’m so looking forward to meeting people face to face who totally get it. Social media is great for support but to be able to build some local friendships would make my life a bit brighter. I never get to see people anymore because most of my long time friends are out of state and because it’s hard to confirm plans when you don’t know what your body has in store until the day of. Blogging gives a connection but I’m hoping our support group can become a regular thing. Plus no judgement if someone can’t make it because we all understand. That’s important. If you have extra spoons you wanna throw my way I’ll take them lol.


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