Zebra Seeking Spoons

The last week or so I’ve gone back to feeling a lot of dizziness and weakness and falling again. I knew it was only a matter of time until it happened again but I was hoping I’d have some more time before feeling like crap again. My brother and his fiancé had their baby shower last weekend and despite feeling odd I made sure I made the trip and was able to be there with everyone. It was so nice to see people because I haven’t felt up to making the Connecticut to Boston trip in over a year so I haven’t seen a lot of my loved ones. I’m so glad I pushed myself to go last weekend. It was such a great experience that I got to be a part of. It did make me extra emotional and wishing I could go back to a time in my life when I could do those things with ease. It’s amazing how much chronic pain and illness has altered my way of life.

I’ve been doing an online training to become an advocate for the US Pain foundation that has taught me a lot. It’s one zoom meeting a week and now I have to pick out a project advocating for chronic pain for a number of hours and then I am certified. I’m going to focus on having more multidisciplinary treatment options for chronic pain available and covered by insurance such as acupuncture, Craniosacral therapy and osteopathy. These are things that make a huge difference for me but that I have to pay for out of pocket and took some time to find good providers. If I didn’t have access to the alternative treatments I get each week I’d be in much worse shape than I already am. It’s also nice to be using my brain for something important and useful even if my body doesn’t cooperate. It reminds me of the ways my life is important and how I can still make a difference even if I am disabled!