Zebra Seeking Spoons

It’s been a long time since I posted and a lot has happened. One headline being I’m officially an Auntie now! This is something that is so exciting for me. Before I got sick I taught preschool and extended day and was always around children and that’s one thing I miss terribly being disabled and unable to work in the field anymore. I can’t wait to watch my niece grow up.

We had planned on making the trip to Boston and staying overnight for the birth and I was committed to it regardless of how I felt. Unfortunately I was in a major flare for the whole trip and we also stayed longer than expected. I had so many conflicting emotions and expectations of myself and I felt so frustrated I couldn’t just be in and enjoy the experience. I had to share that time and space with my pain and illness. But I wouldn’t change a thing for the first time I saw her and held her in my arms it was all worth it.

Living with chronic illness we have to sacrifice so many important moments, lose relationships and become so isolated. It’s not fair to have to choose between being with people you love at an important time or fully listening to your body’s need for rest. I do my best to balance it but it’s exhausting. The last few weeks I’ve just been in bed and now have bed sores on top of everything else. But we are planning a day trip back up to Boston this weekend and you best believe I’ll be there