For whatever reason, I woke up today with the ability to focus instead of clouded in brain fog. I wish I knew the magic formula to get days like this so I could multiply them. I spent my day accessing my creative self, working on poetry and lyrics and updating the website some. I feel my strongest and most proud and happy when I can be creative but these days I rarely have the energy or I’m in too much pain. Now I’m starting to crash and I’m anxious about how bad it’s going to be, how many days worth of spoons did I use up writing today, how bad the corresponding flare up is going to be. I’m trying not to let the anxiety of tomorrow take anything away from the joyful glimmers I got today putting pen to paper. Hopefully I don’t have to wait so long until I get to do it again. I hope everyone who reads my blog or follows me on socials gets something out of my words just like I get something from writing them. It gives me a sense of purpose knowing that in various ways I’m able to help someone feel more understood, less alone, cared about. The connection of social media really makes so much of a difference when you have chronic illness and can’t reliably get out of the house or follow through with plans. I’m so grateful for all my zebras and spoonies I’ve connected with along this journey. Sending big, squishy virtual hugs.
Zebra Seeking Spoons
Surviving and thriving with chronic illness

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